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cancer flu season immune system

Flu Season and Compromised Immune Systems

As flu season looms before us, I am reminded of how very vulnerable people with compromised immune systems are. How can you make sure that you don’t become “Typhoid Mary” or “Typhoid Marty” to someone you love?

1. Be sure to get a flu shot.

It won’t necessarily prevent you from getting the flu — there are so many strains out there. But it protects you from having a severe case, one you might accidentally pass along to someone who is vulnerable. Some treatments, like chemotherapy and steroids can knock the immune system for a loop and prevent the body from fighting off infection.

Also consider getting the pneumonia shot if you are of the recommended age. If you are caring for someone who is seriously ill and can’t get the shot himself or herself, it will be another layer of protection for your loved one.

And also remember that vaccines are important. I have had more than one cancer specialist mention just how dangerous it can be for a patient too vulnerable to be vaccinated to have to fight off a disease because he or she was exposed to a disease by a healthy, but unvaccinated individual.

2. Take cover.

Passing germs and bacteria among family and friends can wreak havoc with a compromised immune system. There’s no need to panic. Be mindful when you sneeze or cough. Don’t wipe your nose with your hand or spray everyone with your sneeze. Tuck your face into the crook of your elbow or use tissues to catch the cough or sneeze. As the old advice goes, “Say it, don’t spray it!”

3.  Wash your hands frequently.

This is especially important when handling medications and food for someone with a serious illness. Sing “Happy Birthday” from beginning to end while you scrub up. Plain soap (not anti-bacterial) and water is best for this. Rinse well.

I have a container of sanitizing hand wipes sitting on a table in the TV room, not just for my use, but also for visitors when they come. It’s easy to dab or swipe your hands when the product is available for all to use.

I have sanitizing cleaning wipes with bleach in the bathroom cabinets, so I can quickly disinfect. You can also spray surfaces with a disinfectant. Follow the instructions on the labels, to be sure you use the product effectively.

3. If you are sick, stay away.

That sounds cruel to many people, but it’s a reality for someone whose body is under tremendous stress because of serious illness. If you feel a cold coming on, you can inadvertently pass that virus to a loved one who doesn’t have the ability to fight it off.

Don’t think that it’s enough to “sit over there” and visit with a seriously ill person. You can’t control every molecule of oxygen in the room or every square inch of surface you touch. If you are in a contagious stage of a virus, or you have an infection that can be spread by contact, you can do great damage. Call, instead of visit. Skype, if you must. But don’t put someone else’s life in jeopardy to satisfy your own desire to visit a loved one.

4. If you’re not the caregiver, don’t drop in, expecting to be welcomed with open arms. Call first. Ask if it is convenient for the loved one to see you. Let her needs or his needs come before your own desires. Seriously ill patients need rest. They need to sleep. They need to conserve the energy they have and put it towards healing. You’ll often find that there are certain times of the day when they just can’t function. Their bodies are depleted of strength, or the rigorous treatments they are going through are so grueling, they struggle with everything from diarrhea to vomiting to headaches. If that is the case, send a card, a note, an email, or even a text, to let your loved one know you still care. You’re not going away or abandoning her or him. You’re merely waiting on the sidelines until such time as a seriously ill person has the stamina to engage in social activities.

And if you’re not sure what to do, ask. The patient and the caregiver often welcome company when there are good days. When you are thoughtful and considerate, you will likely shoot to the top of the “favorite guest” list, and you might even find yourself invited on a regular basis.

For more help as a caregiver, visit: The Practical Caregiver Guides

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cancer immune system infection

Avoiding Crowds with a Weakened Immune System

It’s funny how many times normal life as I know it gets interrupted by cancer. Whether it’s a friend whose epic battle rages on, through brutal chemotherapy regimens, or someone I love getting a devastating diagnosis on an undetected and very lethal type of cancer, it seems like every time I turn around, that beast is going after the people I care about in this world.

This is the season of celebrations, of holiday parties, joyful gatherings, and family times. For most of us, it’s something to look forward to with delighted anticipation. But for someone who has an immune system weakened by cancer treatment, it can be a royal bummer.

Why? The minute you’re told you can’t go out to the movies or eat in your favorite crowded restaurant, what little fun you have in your life evaporates. When you hear that you need to avoid the general public, it’s heartbreaking. It’s the equivalent of being sentenced to solitary confinement in a dreary jail cell.

Or is it? That subject came up recently in a cancer circle. How can you have any fun if you’re stuck at home? You might be surprised.

Having spent some time working with hospitalized kids in the pediatric wards of a couple of hospitals, I saw firsthand the value of keeping bedridden patients engaged in having fun. Why shouldn’t adults benefit from the same strategy? Laughter makes us feel better. Playing keeps our spirits light. When we’re having a good time, we aren’t thinking about what cancer is taking from us. We’re thinking about what we enjoy. That’s great medicine for our psyches.

When my mom had to lay low, we brought the fun to her. We had movie afternoons and evenings that were great fun. She loved movies, so we got her premium movie channels for the TV and got her a subscription to Netflix. Sure, she could watch the movies by herself, but the truth is my mother was a social butterfly. There was nothing she enjoyed more than watching them with other people, so we made it an occasion.

When she couldn’t go out to dinner in a crowded restaurant, we brought dinner to her and made it a festive occasion. When she couldn’t mingle with other customers at local stores, we made sure she got to choose what groceries she wanted us to bring home. And sometimes, just because she was going bonkers staring at the same four walls, we went for long exploratory drives that took us on the roads less traveled.

People who are facing the serious challenge of wonky blood counts and suppression of the immune system during treatments still need to have social lives. They still need to feel like they belong to the living world. That’s why, as cancer caregivers, it’s important that we make fun happen for our loved ones.

Whether you read a favorite book to a loved one whose hands are challenged by neuropathy or you get together in the kitchen to prepare a favorite meal, think outside the box. When the outside world seems to pose a great risk, open up the house and let the sun shine in. What’s wrong with inviting a few friends over for a game of cards or dominos? What’s wrong with picking up a tasty meal to share with family?

The important thing to remember is that life is always supposed to be fun, and never is this more important than when cancer snatches away our loved ones’ quality of life. As cancer caregivers, it’s our responsibility to address the psychological aspects of such a blow. We want our loved ones to remain invested in life. The last thing we want is for them to feel all the good times are gone and despair is all that lingers on. Without fun activities, the hours drag on and on, pulling down the fragile spirit of someone challenged by cancer and its treatment.

Make an effort to lift your loved one’s spirits by making home, sweet home even sweeter. Know what your loved one enjoys and make it happen at home. No one wants to be alone, like some sad, little bubble boy encapsulated in a plastic sphere, forced to play alone while everyone else has playmates. Keep plenty of hand sanitizer at the ready, wash your hands frequently, and make sure all visitors know that no one should come who might have a cold, the flu, or any other virus. You want your loved one to be safe, so take simple and smart precautions. And then open the door. Invite the laughter, the love, the joy into the house. Make your loved one part of all the action, at a pace he or she can handle.  Build on the moments that make us feel connected as human beings. Respect your loved one’s endurance level. It’s amazing what that will do for the human spirit. It sends the message that life goes on, even with the challenges of being vulnerable to infection. That means cancer doesn’t win this one. Cancer is not in charge of our inner children. We are.

Whether you host a party to trim your tree or invite folks over to spin a dreidel, give your loved one the chance to be involved. Bring the joy of the season home. Don’t be afraid to go hog wild. Don’t worry about overdoing the lights, the festive music, the food. Better to have too much fun (is that even possible?) than not enough. Celebrate!

Categories
cancer patients flu season immune system

Think “Sink!” and Save a Life

Flu season….These two words can strike terror into the hearts of the sturdiest of cancer caregivers. For most people, it’s more of a nuisance than anything else. But for a loved one with a compromised immune system, it can be a matter of life or death. What can you do? Think “Sink!”

Decades ago, when my aunt was dying of cancer, we went for a visit at a time my allergies were in high gear. I spent the whole time worrying about her. What if I was wrong and I had a cold, not allergies? Did I have a temperature? Were my glands swollen? I constantly checked my symptoms in an effort to protect her delicate immune system. No one wants to be Typhoid Mary for someone so very vulnerable, so I made sure I didn’t put her at risk. I kept a physical distance, washed my hands often, and forced myself to be cognizant of the potential risks. Thankfully, we were able to have a wonderful visit, without complications or catastrophe. It was the last time I saw her and a memory that has stayed with me through the years.

As a caregiver, I went through a similar time when my mother was dying of cancer, carefully taking precautions to fend off contagions that could wreak havoc with her. I bought a lot of hand sanitizer, making sure there was always a bottle of it on the dining room table for visitors and one in the car, for those trips to the hospital or physician’s office.

I also bought a lot of hand soap and frequently reminded myself to think “Sink!” as soon as I came home. For those who don’t know, common medical wisdom actually suggests that antibacterial products are less healthy than just plain old soap and water when it comes to cleanliness. Washing your hands properly can be a Broadway moment — most people just do a cursory job of scrubbing up. It’s recommended you sing a complete version of “Happy Birthday” in order to be properly disinfected your hands. Me? I like to get creative. At this time of the year, I might hum “Jingle Bells” all the way through. My other favorite is “These Are a Few of My Favorite Things”, from The Sound of Music: “Raindrops on roses and warm woolen mittens….”

Many cancer caregivers take great precautions to keep visitors from spreading viruses, bacterium, and germs during visits to the home, but what happens when they themselves wander out into the wilderness? Every time we head out to the store, we’re intermingling with the public. Every time we grab a shopping cart, we’re touching surfaces that other people have touched. Every time we work out on the equipment at the gym, we’re exposed (I carried my own packets of wipes and cleaned the machines before AND after I used them). For normal people, this usually isn’t that big a deal. We can fend off the occasional cold virus. But as caregivers, we’re supposed to remain healthy. How else can we care for our loved ones?

Right now, the current flu vaccine apparently isn’t working as well as hoped. The Center for Disease Control recently announced that this year’s outbreak has reached the epidemic stage and it’s rapidly spreading across the United States. What does that mean for you? Every time you go out in public, you’re at risk for catching the virus. If you bring it home with you, your loved one may catch it.

Should you stay locked up at home? Not necessarily. What you should do is exercise some caution. Make sure you are careful to use sanitizing wipes or hand sanitizers whenever you are touching surfaces used by the public. Avoid people with obvious sniffles, coughing and flu/cold symptoms. Make sure that when you come home, you wash your hands properly. Think “Sink!”

Feel a cough or a sneeze coming on? Don’t put your hand to your mouth or nose! Go “hands free” and use the crook of your elbow to shield folks from that spray of secretions. And if you keep a box of tissues for those unexpected winter sneezes caused by allergies, dust, dry air, or holiday decorations that have been sitting all year in the attic, think “Sink!” after that nose gets wiped. It’s just one more layer of protection for your loved one.

But there’s more that you can do. Regularly disinfect kitchen and bathroom surfaces. Pay attention to those items most likely touched by human hands — the refrigerator door handle, the microwave handle, the toilet handle, door knobs. It’s not a matter of hosing down the place every day. Get a good general purpose cleaner and keep it handy, for a quick wipe down, with roll of paper towels (don’t reuse a cloth or sponge — these are incubation factories unless they are sterilized after each use). Don’t forget the TV remote, especially if your loved one shares it with other people!

Believe it or not, even computer, tablet, and cell phone surfaces are prone to harboring harmful germs. Stanford University students examined cell phones and determined they were 18 times dirtier than toilet handles. Never use regular cleaning products on electronics! There are special wipes and microfiber cloths you can buy that are made specifically for electronics — they won’t damage your equipment while they safely remove contaminants. (Follow manufacturer recommendations for safe cleaning of electronics!)

Just one last thought — so many people like to share photos and videos on their phones, passing them around from person to person. You might want to cheerfully intercept it as it heads toward your loved one and be the holder of that germ factory. Your loved one still gets to enjoy the show, but without being directly exposed.

Get yourself a rubber ducky and put it on the sink as a friendly reminder. Train yourself to think “Sink!” and you’ll have a better shot at keeping you AND your loved one healthier this winter!

For free caregiver education, visit The Practical Caregiver Guides — help someone you love!